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MNAAP Newsletter

Promoting Adolescent Health: Partnerships Between Pediatricians, Parents and Adolescents

ReneeSieving AnnieMcReeBy Renee Sieving PhD, RN, FAAN, FSAHM & Annie-Laurie McRee DrPH, University of Minnesota

Guidelines from the AAP and other professional organizations highlight provision of confidential care and time alone with a clinician as critical elements of adolescent preventive services. However, recent research highlights a gap between professional guidelines around confidential services and practice.

A nationwide study with parents of teens found that of adolescents who had a clinic visit in the past year, only 30 percent reported time alone with their health care provider. In another study examining confidential services and private teen-clinician discussions, adolescents, parents, and clinicians all expressed strong support for confidential adolescent services but also voiced ambivalent attitudes about these services. This ambivalence often reflected the desire to promote adolescents’ independence as health care consumers, while also wanting to continue to protect them from harm. Our current research–involving Minnesota-based clinicians, parents and teens—explores the balance between confidential services and parent engagement.

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March for Our Lives: March 24, 2018

By Sheldon Berkowitz, MD, FAAP, Children’s Minnesota 

On a cold and windy March morning, about 20 pediatricians and pediatric residents joined with 20,000 other Minnesotans to rally against gun violence at the Capitol in the aftermath of the senseless deaths at Marjory Stoneman Douglas High School in Parkland, Florida six weeks earlier. This was the 30th mass shooting of 2018.

Tragically, 424 children aged 0-17 have been killed or injured by a firearm so far this year. Many of us carried signs with ”Pediatricians Against Gun Violence” and received a lot of positive support for this signage.

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Early Hearing Detection and Intervention

Lisa Schimmenti

AbbyMeyer

By Lisa A. Schimmenti, MD, Mayo Clinic School of Medicine, and Abby Meyer, MD, Children’s Minnesota

 The 2018 Early Hearing Detection and Intervention (EHDI) National Meeting was held March 18-20, 2018 in Denver, Colorado. As Minnesota’s AAP EHDI Chapter Champions, we attended the meeting and met with other Chapter Champions from across the country to review the most recent data and to strategize for the upcoming year.

On a national level, data from the 2015 CDC EHDI Hearing Screening & Follow-up Survey (HSFS) showed that 98 percent of infants had their hearing screened, 96 percent by the benchmark timeframe of before 1 month of age. Nearly 72 percent had confirmed diagnosis by 3 months of age with a 28 percent loss to follow up/loss to documentation rate. About 88 percent of infants identified as deaf or hard of hearing (DHH) were referred to Early Intervention (CI) and 65 percent of DHH infants were enrolled by 6 months of age. For further details, go to: www.cdc.gov/ncbddd/hearingloss/ehdi-data.html.

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New State Benefit for Children with ASD and Related Disorders

By Nicole Berning, MS, BCBA, Minnesota Department of Human Services

Research shows that early identification and treatment of Autism Spectrum Disorder (ASD) results in more favorable outcomes. However, a recent study of ASD in Minnesota found that children were identified at an average of 5 years old.
To encourage early identification and intervention of ASD and related disorders, Minnesota has created the Early Intensive Developmental and Behavioral Intervention (EIDBI) benefit, which provides medically necessary treatment to people under age 21 on state health plans.

A 2014 CDC surveillance study showed 1 in 59 children have ASD
In 2018, 19,386 Minnesota children were identified as eligible for special education services under the autism category.

EIDBI services focus on supports that help people with autism and related conditions interact with others, learn and play, and improve functional communication. In addition, treatment strives to build independence and improve quality of life for the person and their family.

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Member Profile: Joe Neglia, MD, MPH

Neglia_2017_Lobby UMMCH (002)

You’re the physician-in-chief at the University of Minnesota Masonic Children’s Hospital. You’re also involved in childhood cancer research. What does a typical day or week look like for you?

The days and weeks all vary a lot. Last week was spent doing work at our Children’s Oncology Group meeting in St. Louis. The focus for those 3 days was on pediatric oncology, our clinical trials operations, and planning for further research.

This week will be many more administrative meetings that will cover a wide variety of topics from clinic operations to academic recruitments. I continue to do my weekly clinic and to attend on the heme/onc service here at the University of Minnesota Masonic Children’s Hospital as well, so interspersed in all of this is clinical work.

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